It has been almost 3 weeks since my discharge and last blog post… I am bad at hiving updates, I know.
Shortly after my discharge I went for follow up bloods and visit with Prof Novitzky and he told me that my blood levels are excellent and that I am no longer neutropenic! He also said that I am fine for travel and that there is no reason for me to have a follow up visit. I was so glad, it meant that the rest of our stay in Cape Town was purely holiday!
We moved our accommodation to Simons Town, about an hour from where we stayed in Observatory. The new place had 3 levels, so I had to climb a lot of stairs, something I would not have been able to do before my treatment. My brother and his girlfriend joined us just before Christmas so I went out with them, to shops and to the beach, also something I was not able to do before. I needed support at times, but luckily someone’s shoulder or a wall was always close by to lean on.
On the 10th of January my father went back to Saudi to start work again after 68 days of leave. My mother and I traveled on that same day to Pretoria to visit family. I had a wedding where I saw my father’s side of the family, a lunch where I saw my mother’s side and had dinner with my best friend. I will see the rest of my friends and more of my family in the week to come before my mother and I leave for Saudi on the 24th.
There are certain MS side effects that improved in the week since my discharge but have since worsened again, notably my eye sight, my balance and the tremors in my left hand. But despite the worsening, it is still better than before treatment. Something that has not improved is my nocturnal bladder control and I still wear a condom catheter to bed. On the positive side, my speech has improved and my fatigue is a lot less as well as my concentration and cognitive function.
When back in Saudi I will start my fitness regiment and work on regaining muscle mass that I lost as well as muscle function that has atrophied.