Last week saw my 3 month post transplant anniversary. I was doing well and my headaches are less and I haven’t had nocturnal incontinence since I have stopped using the condom catheter, but about 3 weeks ago I started developing ulcers on my cheeks at the back of my mouth. The ENT doctor I saw gave me Flagyl, Meiact (Cefditoren Pifozil), Augmentin, Daktarin oral gel and Gengigel, they started getting better but were still painful when eating and slow to heal. In this last week I have been weak, little appetite and no energy.
I went for a full blood count and this was the report I received:
In an email conversation with Prof Novitzky, he said he sees mild leukopenia (low white cells) but the rest of the blood elements appear OK and prescribed Acyclovir 400 mg 8 hourly x 5 for what he thinks might be Herpes ulcers in my mouth.
Since taking the Acyclovir I have noticed a bit of improvement in my mouth, but still very weak. We will see how it goes after I have completed said medication
My mother also noticed that a characteristic smell that I had, although not unpleasant, has gone since the chemo.
There are some changes that I have now noticed, tried my best to photograph them:
My eyebrows are a darker red than before
My hair is also darker; it would appear black but will have to wait for it to be thicker to see
So is my chest hair and where my Hickman line was removed has healed quite nicely
My finger nails have white bands on them that started growing out post chemo
Now I know there are 2 questions on everyone’s mind:
Did it work? Too soon to say
Was it worth it? Yes!